DTRF’s Running for Answers 5K Run/ Walk & Kids’ Fun Run is the DTRF’s (www.dtrf.org) largest fundraiser. This event, occurring in Philadelphia every fall, is for patients and nonpatients alike. We encourage peer-to-peer fundraising efforts, and also focus on attracting the general public to create awareness around this rare sarcoma.
The Desmoid Tumor Research Foundation is a patient advocate group that raises funds and awareness for desmoid tumors, a very rare soft tissue sarcoma. We work directly with doctors to fund clinical trials, and help connect patients all over the world to find the best treatment options. Desmoid tumors affect 2-4 people per million; there are 900 new cases in the U.S. every year.
More information about the Desmoid Tumor Research Foundation and its efforts here: http://www.youtube.com/watch?v=E6aSn9F1_XE